at
August 26, 2025
I think the "worst" is over when it comes to this new flareup/setback because I can finally walk more without wanting to die. The other day I could even sort of function until 5pm but then I still get all sorts of aches, tension and "deep itchiness" in all the muscles of the back of my head, and my neck and shoulders are really bad right now too. So I still have to keep going back into my bed or else once I've hit the "limit" of it, it starts to get really uncomfortable, shooting pains at me, and I start to feel that unberable agitation start to creep up. Usually being in bed can sort of "recharge" my muscles and let me be upright again for a while. Also I cut out caffeine because I feel like it makes the dizziness worse and I feel more panic attacks creeping up? Maybe. Alhough now I get intense afternoon fatigue where I feel like I'm falling asleep with my eyes open. Just can't win no matter what.
at
August 12, 2025
It's been bad for weeks now and I can barely even more or walk. I get about 2 hours in the morning where the agitation is still mild and bearable, and then after that I'm in all sorts of tortures in my brain and occipitals and neck area, especially for any minute that I tilt my head downwards. And when I lay down, the tremors and muscle spasms are insane - feels like the whole head/neck/shoulder area is just throbbing and freaking out. Tying to "wait it out" but I might try some more self-massage or maybe stretches (I was previously going to avoid stretches and did strength exercises instead, now I wonder if that was the wrong choice. I feel like this is an endless loop.)
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